Updates for John, February 4-18, 2004
Posted Monday, February 16, 2004 at 8:39 pm
John had blood tests today and his white blood count is back to
normal, he has had no mouth sores, and his energy and appetite
are rebounding...answered prayer anyone? In anticipation of
his hair falling out, he and two friends buzzed off their hair
today. We're looking for some non-toxic markers for scalp
graffitti. We have an appointment with a surgeon and an
oncologist in Indy on Thursday. Otherwise we are looking
foward to settling into a nonmedical mode until the next chemo
blast next week. We would love to see that tumor shrivel-up...
we'll keep you posted.
Posted Friday, February 13, 2004 at 6:35 pm
John is feeling good! Eating well, no vomiting, sleeping
well, cheerful. Plugging away at school, Bible quizzing, and
a Star Wars novel. His white blood count is low as
expected. He is at increased risk of infection meaning no
group activities, lots of hand washing, and prayer. Pray with
us that his counts come up quickly for his safety and so he
can get his next dose of chemo planned Feb. 23. No other
signs of nasty chemo side effects...thanks God. God's
peace is here.
Posted Wednesday, February 11, 2004 at 11:11 pm
John woke up feeling great this morning, then during our family Bible
study as he was sucking down a power milk shake he suddenly vomitted.
Mental note: John's constant companion...vomit basin. Really, John
is doing well. We won't miss the stealth hurling, whenever it stops.
He has long spells of feeling pretty good. It's interesting to me
how easily I trust God with my soul for eternity, but trusting him
with life during these short years on earth is a struggle...go
figure. If I can't trust God with John's well-being and all the
other details of life now, I'd better find a different answer for my
eternal destiny. "Trust in the Lord with all your heart and
lean not on your own understanding; in all your ways acknowledge
him, and he will make your paths straight." (Proverbs 3:5,6)
Posted Tuesday, February 10, 2004 at 11:55 pm
John has done great today. Some nausea but no vomiting,
cheerfully working on school, playing a friend's Playstation,
twinkle in his eye. I'm back seeing patients in the office.
Many express concern and support. God, make my peace and joy
in you a contagious disease so that other broken people can
catch it and find wholeness in you. Jesus said,"I have come
that they may have life, and have it to the full." (John
10:10) Our family is experiencing life in Jesus in the midst
of this trial...what if others find their life in Jesus
through it as well. Now that gives meaning to what might
appear to be senseless suffering.
Posted Monday, February 9, 2004 at 11:48 pm
John had a check-up today and is doing well. He can quit the
IV fluids...his labs are normal. We expect his immunity to
drop later this week. He has periods of feeling pretty good
punctuated by vomiting out of the blue...normal I guess.
Pray that the vomiting stops so he won't need IV fluids.
Other prayers are that the things we are doing to prevent mouth
sores work and that there will be no infections and minimal
suppression of his immunity.
Posted Sunday, February 8, 2004 at 10:50 pm
John felt too pooped-out to go to church today. He listened
sermon tapes while the rest of us went to church. Nothing like the
body of Christ at church to mend our wounds...we came home refreshed,
encouraged, and loved. John was nauseous until mid afternoon when he
thought bacon sounded good. Laura cooked up a pound and he ate half
of it. Reminds me of having a pregnant wife in the house. John's
spirits are good...I told him he doesn't have to fake it and he
assures me that God is close...this warms my father heart and builds
Posted Saturday, February 7, 2004 at 4:50 pm
Today, John has been able to eat more...mostly out obedience to
his mother rather than hunger. The prefered item seems to be
Carnation Instant Breakfast, a banana, two scoops of ice cream,
and enough milk to blenderize it. Make every bite count is
the rule of thumb until his teenage appetite kicks in. John's
knee pain where the tumor is has been minimal since the
chemotherapy finished...prayer plus poisons. Good attitude,
not much energy, lots of naps, little nausea,....thank you
God. John and I wept together as he shared with me how real
God's presence is in his life right now. This earthly daddy
is grateful John's heavenly daddy is taking good care of him.
Posted Friday, February 6, 2004 at 6:13 pm
Hurray, John and I got home mid afternoon. He's tired but
eating some and hasn't vomited since this morning. We met
with home health to train us in running an IV fluid while
while John sleeps. This will keep him from drying out and
should help him feel better without us having to force feed
him fluids during the day. Now you can pray for his energy
level, his appetite, that his white blood cell counts don't
get to low, that he doesn't get infected while his immune
system is down, that he doesn't get the mouth sores that
often develop, and of course that nasty old tumor...die sucker.
Posted Thursday, February 5, 2004 at 8:44 pm
John finished up this week's chemotherapy today. He is
experiencing occasional waves of nausea, vomiting twice, no
appetite, little energy for anything other than Nintendo or
watching TV. Dr. Hill is pleased with how John is doing,
especially with his attitude. "I don't feel as bad as I
look." God bless that kid.
Posted Wednesday, February 4, 2004 at 10:03 pm
Laura spent last night, today, and tonight with John. He's
having occasional waves of nausea now but doing well overall.
He'll get another 24 hours or so of chemotherapy and hopefully
get out of the hospital Friday. God's peace and comfort are
such a blessing and answer to prayer.